healthjourney

Muscular Dystrophy

Hi, my name is Tom, short for Thomas. I was diagnosed with FSHD a few years ago, in my twenties. I'm slowly learning how to cope with the disease, and I hope to find others who are learning to cope with it as well.
Thomas Robustello
  • Blog Topics: Muscular Dystrophy
  • 2015: Facioscapulohumeral muscular dystrophy

My Latest Posts

Learning to Cope with FSHD

Learning to Cope with FSHD

I have never heard of muscular dystrophy until I was diagnosed with it myself. It started in my shoulders. It was beginning to be hard for me to lift things up, and soon I felt...